Thursday, September 30, 2010

Quick update

My last round of chemo (on 9/22) was really rough, and I've been pretty sick ever since. But tonight I felt much of the sickness lift, and I am feeling much better. Praise God!

I have a CT scan coming up on 10/13, and I ask for your continued prayers and belief with me that it will show I am cancer free.

Also, I have spent time the last 2 nights answering email. I am down to 177 in my inbox! I want you to know that if you have written to me, I HAVE read it. I read every single email. If you have sent me a Scripture, I am working now to put them into a Word document that I will keep with me for quick reference. If you have sent me an encouraging song or video, I have either watched/listened or added it to my list of things to watch/listen. I appreciate every encouragement, and even more than that I need them. There's a verse in Isaiah (41:13) that I've been meditating on which says: For I am the LORD, your God,
who takes hold of your right hand
and says to you, Do not fear;
I will help you.

One of the ways God is holding my hand and helping me is through all of you. Through your prayers, encouragement, belief and unending hope I am given strength. It is with this strength that I continue to battle the fight for my life...the fight that I will WIN. I am "hard pressed on every side, but not crushed; perplexed, but not in despair; persecuted, but not abandoned; struck down, but not destroyed." (2 Corinthians 4:8-9) The Word of God says that I am more than a conqueror through Jesus who loves me (Romans 8:37), so who am I to question that or to think any differently.

Praise you Lord that your Word is TRUE!

Saturday, September 18, 2010

Blessings

I saw a new doctor on Thursday...Dr. Ritch at Froedtert. He was originally recommended to me by two of my original doctors, but for various reasons I went elsewhere. Now, for other reasons, I've switched to him.

My mother-in-law and Eva came to my appointment with me on Thursday. My mom wanted to come but couldn't get off of work. :( Anyway, we waited for 2 hours to see the doctor, during which time I became rather nervous. I had heard all kinds of things about Dr. Ritch that made him seem "scary." I felt intimidated before I even met him. I spent a lot of time before the appointment praying, and once we got into a room, Jeanette and I prayed. I know Jesus was there holding my hand because I felt so much peace. Once I actually met Dr. Ritch, I felt silly for being so afraid. I could write for many paragraphs about why this is, but much of it was intangible. I just felt comfortable with him. I could ask him questions, and I felt he really listened to what I was saying. He was very attentive. I now feel very much at peace with my choice to switch doctors/hospitals.

Right now I ask for your prayers for wisdom as I figure out the best way to deal with pain. I haven't been sleeping well because of it, and it has been an emotional challenge. However, last night I determined it would not get me down, and so in the middle of the night while waiting for my heating pad to warm up in the microwave for the millionth time, I just danced in my living room and praised God. (my neighbors probably think I'm crazy...and you would too if you've ever seen me dance)

Now for the exciting news! Tomorrow Matt and I are going to the Packer game!!! The tickets were a gift from Lisa Boortz and her husband. I have only met Lisa one time, and am just blown away by their generous gift!! We are so excited. Pictures to come... :)

Another huge blessing in this past week... I had "baby food" on my grocery list, and before I made it to the store I was given a HUGE supply by two of my cousins. They both have babies who have moved on to real people food so they didn't need it anymore. Thank you God! (and Shawn and Karen)

Well, I'd better go get Eva's things together for her day with Grandma Gigi tomorrow, and Matt's and my things together for the game. Woohoo! Goodnight :)

Tuesday, September 7, 2010

Strength!

Today I am praising God for strength! The Word of God is alive and true. I have kept reading my "strength" verses every day, and each time I do they become more alive to me (rather than becoming "old hat"). I feel very good today, completely strengthened and alive; no longer weary.

May I recommend a book to all of you? I just finished it last night. It's called "The Cross and the Switchblade" by David Wilkerson. It's a true story of how a small-town pastor started a hugely effective ministry to some of New York's hardest gang members in the 1950's. (The ministry still exists today). The book itself is a page-turner; it simply tells a good and intriguing story. But what I absolutely love about it is that it depicts the purity of God's love and compassion for people. If you've ever doubted that God's love and power is real, I urge you to read this book. (and even if you haven't, I still think you should read it). :)

One thing I noticed about myself in the past weeks is that my interest in my appearance has been waning. Running through my head have been thoughts like, "I am freaking 27 years old and have no hair. Why should I bother to put on makeup?" I used to enjoy getting dressed up and such, but lately there's been no joy in it. Well, for whatever reason yesterday I woke up with a renewed spirit (has someone out there been praying for that?). I decided I was going to look nice for a change, and NOT like a cancer patient. I've had a wig for some time now that Aunt Betsy (who is currently battling cancer for the 3rd time) graciously lent me. I don't know why, but I never wanted to wear it. Yesterday I decided I would. I felt a little embarrassed about it at first, but once I got used to it, it was wonderful! I put on makeup, wore some favorite clothes, and had a really nice day of it! :) I'm back to the bandanna today, mostly because I don't know how to care for the wig. Note to self: call Aunt Betsy and ask her. :) Anyway, here's a picture of me in the wig. It's a little askew here, but you get the idea.

I had a wonderful lunch date today with Michelle Frie. She and her husband are pastors of Metro Harvest Church here in Menomonee Falls. I've gone twice (and Matt came with me this past week) and I really enjoy it.

Oh, another example of God's provision before I close this. Today I was at Target browsing the baby aisles and they had 7 cans of Enfamil ready-made formula on clearance for $2.50 (originally $6.50). I thought for a minute that maybe I shouldn't buy them, recalling the Bible story of the Israelites "storing up" manna and having it go bad because they weren't trusting God. But it's not like I went to Target to buy formula because I wasn't trusting God to provide. It was just there, and for such a good deal!! So I bought all they had. :) Then I got home and saw on my mess of a desk that I had Enfamil coupons (sent to me by my cousin Jodi...thanks Jodi!) for $5 off. So I will go back to Target with my receipt and see if they can still apply the coupon. I think they should be able to. Thank you God!

Hehe, I didn't think I'd get to write so much because Eva was getting fussy in her Pack N Play. But before I even had a chance to go get her, she fell asleep. she is such a sweet girl, and such a source of JOY in our lives. Thank you God for the gift of Eva.

Friday, September 3, 2010

On the upswing

Thanks for your prayers this week. I had some frustrating experiences involving insurance approving my new medicine at the beginning of this week, but thanks to my amazing mom everything is now worked out.

I had the first cycle of my new chemo on Monday. I can't say for sure yet, but I think it's going to be somewhat better than what I was on, though I'm not gonna lie...it still sucks. I'm now on Oxaliplatin (sp?), Avastin and a pill called Xeloda (which is a pill form of 5FU). I was able to eat at least a little each day, and that part seems to be getting better with time. I'm not sure how it'll be with the Xeloda pill because I take it for 2 weeks straight (rather than getting a big IV dose in one day). I thought I was going to be on an every 2-week cycle, but since I'm on Xeloda and not 5FU it's every 3 weeks. For this I'm grateful. Finding 5 days worth of help every 2 weeks would have been a logistical nightmare, and so very taxing on my mom and mother-in-law. It's hard enough for them as it is, and if I stop and think about it for more than 2 seconds I get so stressed about how stressed THEY must be. So I just don't think about it. I just hope they know how much I appreciate them. I will never be able to repay what they've done for us, and what they will do for us in the future. May God richly bless them.

My prayer these days is for strength. I am weary of the journey. A friend (Roger) gave me a list of Bible verses related to strength, and I read them as often as I think of it. I pray they will become food for my soul which will translate to strength for my body.

Matt's grandparents were here on Wednesday and they took us to Steinhafel's to buy us a mattress and box spring for our guest room. (Thank you so much "Nana and Papa!") I wanted so badly to go along even though I felt so sick. I just set my mind that I would go, and so I went. I am so glad I got to go. I hate missing things!!! I know it seems like something small, but it was important for me. Thank you Lord for the boost necessary to get off the couch.

Today I went to lunch with Mom and Michael. Again, I had to peel myself off the couch to go, but I'm so glad I did. My new phrase is, "I REFUSE to become weak." I realize my body needs rest after chemo, but I will not rest one SECOND longer than necessary. I have way too much life to live. After lunch, we stopped at the hardware store so I could get wood glue, sand paper, nail hole filler and Old English for a few little projects I want to do at home. I got part of them done today and hope to finish them tomorrow. Then, of course, I needed to rest.

Eva gets more spirited every day. She is so full of joy. I am ready to be well so that I may fully enjoy her. I try not to think that I'm "missing" any moments with her when I'm sick, but that the moments I'm well mean so much more because I appreciate them so much more than I ever would have before. I don't think you can go through something like this and not learn to appreciate every single moment.

Anyway, I hope I don't sound like a whiner or a complainer. I am grateful for so much, but it's hard to not wish for this battle to end and for the victory to be in-hand. I believe it is there in the future, and I just pray for patience as I wait in hope for the Lord.

Friday, August 20, 2010

Home

Ah, we're home. Things went okay at M.D. Anderson. Many of the areas that they saw cancer in have shrunk, but two areas have gotten bigger. Because of this, Dr. V is changing my chemo. I now have to go every 2 weeks instead of every 3, but the new regimen will supposedly be easier on my body. I didn't even bother reading the side effects. I'd rather not know.

I will just keep on believing that my next scan will be cancer free. I was disappointed that this wasn't the one, but it's coming. I know it is.

In the meantime, please pray for me as I press on. Right now I feel just fine physically, but there is a weariness in me that is difficult to explain. Please pray for strength.

Oh, for the fun of it I'm going to tell you about our day yesterday. It was a little insane. Well, to add to the insanity you need to hear about Wednesday first. We left home at 4 a.m. for our 6 a.m. flight, parked in the remote lot at the airport in Milwaukee, caught our flight to Houston and arrived with enough time to eat lunch before I had to check in for my blood work and CT scan. After all the lovely CT scan prep (eww, eww, gag, gag), I finally got my scan at 7:30 p.m., and we got back to the hotel around 8:30...exhausted of course.

So yesterday I had my appointment with Dr. V at 8:30 a.m. and then we went back to our hotel to get the rental car and head to the airport. We got there at about 11 a.m. so we tried to change our flight from a 3:30 p.m. to a 12:10 p.m. 12:10 was full, so we asked to be put on standby. Turns out that plane had a stop in Orlando, and so even if we got on the 12:10 in Houston, there was no guarantee of a seat on the Orlando to Milwaukee leg, and if we didn't get on that one we'd be stuck in Orlando overnight. So scratch that, we stayed on the 3:30. I had such a desire to get home and see Eva that I was pretty upset we couldn't get on the earlier flight, but such is life. We hung out at the airport 'til about 2:30 when I got an automated courtesy call from Southwest saying that our 3:30 flight was now scheduled to depart at 5:45. Oh, and did I mention that there's no such thing as a direct Southwest flight from Houston to Milwaukee? No, this 3:30-turned-5:45 flight had a scheduled stop in Dallas and Kansas City before landing in Milwaukee so we'd be getting in VERY late. Anyway, this delay just about put me over the edge emotionally. I was not happy. I woke Matt up from his nap and asked if he wanted to try to get on a flight to Chicago instead. So we went to the counter and asked to switch to the Chicago flight departing at 3:15. God bless that ticket counter lady. She switched our flight, took one look at me and said, "Do you want to pre-board?" and gave us a "pre-board for disability" pass. Um, I didn't think I looked THAT bad, but I guess the free flight passes from Angel Flights plus the head scarf plus the fact that I'm pretty sure I laid my head on the counter in a "I am so done" way while she changed our flight added up to her making the conclusion that we needed to pre-board. I don't usually like to do anything that allows me to identify as "sick" if I can in any way avoid it, but whatever. We pre-boarded. Matt made a call to Amtrak to book tickets from Chicago to Milwaukee on the 8:05 p.m. train and we flew to Chicago arriving around 5:30 p.m. We hopped on the Orange Line train (good thing we know our way around Chicago), ironically passing by our city apartment (which we still have for another 9 days or something) and hopped off at Quincy to go to Union Station. We got to Union around 6:30, had a couple of cheap beers while we waited, and then got on the Amtrak at 8:05. We arrived at the Milwaukee Airport Amtrak stop at about 9:30 and got on a shuttle to take us to our car. (the Amtrak lot is not the same as the remote lot we'd parked in the morning before. Wow, was that just a day ago??) We asked the driver if he could take us to the "A Lot" and he said, "Yeah, I'll take you there" in a voice that clearly stated he would take us, but he wasn't happy about it. As he pulled into the lot, he asked where we were parked. Matt told him, "I don't really know. Just drop us off at the main shuttle stop and we'll find it." And, the dude says in his obviously annoyed tone, "Why didn't you just park in the Amtrak lot?" AHHHHHH, I didn't know whether to laugh or cry, but I will tell you this much. Dude was just lucky that: 1.) We are both pretty non-confrontational and 2.) We were both too tired to say much of anything anyway.

Unbelievable.

But anyway, new subject. Here's where I'm at tonight (besides exhausted as we just got home from a day at the zoo). God is good. He is healing my body, even if the physical evidence isn't there yet. I don't understand why I'm not better yet (or wasn't at the time of the scan) but I believe that I have a destiny that includes me surviving for many many more years, and so I WILL be healed.

Thank you all for your prayers. I ask that you continue to pray for my strength as I battle both physically and more importantly spiritually. John 10:10 says "The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full." So I claim that "life to the full" is for me, and know that cancer is NOT life to the full. I will be well and I will have life to the full once again. Please pray that I have the strength to hang on to such promises.

Thank you all!!

Monday, August 16, 2010

Houston

Another long overdue post. My time to write gets shorter and shorter as little Eva chose 6 months of age as her preferred time to start crawling/scooting/dragging herself across the floor. Whatever you call it, she gets where she wants to go, and she does so rather quickly. Un momento as I go redirect her toward toys and away from electrical outlets...

Anyway, I wanted to let you all know a couple of things.
1. My tumor markers continue to go down. Praise God!
2. Wednesday and Thursday of this week I go to M.D. Anderson for a CT scan (Wednesday afternoon) and an appointment with Dr. Varadhachary (Thursday morning). Matt is coming with me, and Eva is staying with Grandma Jeanette.

Please pray for our trip and the results of the scan. I am believing wholeheartedly that eventually my body will catch up with what my spirit already knows, and I will have a clean bill of health. I am praying that this would be the scan that shows I am cancer-free. Please join me in that prayer.

Also, as mentioned on this blog before, I have pain that has come and gone away twice now in my upper left abdomen. The timing of it is bizarre (it comes 1 week before I have chemo, and goes away when I get chemo). I talked to a nurse practitioner (Kristi) today, and she thought it could be related to the Neulasta injection that I get after chemo to boost my blood counts, because it can possibly cause spleen enlargement. But she seemed to think it was bizarre timing for it to be that. She offered no other suggestions though. Let me for one moment vent. I am SO SICK OF BEING A MEDICAL MYSTERY. But I have to just thank God that He knows all things, and that He is trustworthy and with me on this insane journey. That being said, the end of this week or early next week when the pain would be "due" to return, and I am just praying against that. I don't care what it's from, I refuse to let pain rule my life.

Oh, another piece of good news to share. I had my 4th round of chemo on Aug 5th, and this time the recovery has been the best yet. I had less nausea, very little loss of appetite, and less of the other horrid side effects that have accompanied my chemo in the past. Especially since I'm told that chemo side effects are often cumulative (they get worse each time) I find this awesome. I believe that God is carrying me through this and that is why it is not effecting me nearly as badly as it could.

So that's the update. A HUGE thank you to everyone for your continued support and prayers. For those who make meals or come to be with me and Eva after chemo, you are my angels. To my mom and Jeanette for sacrificing SO MUCH for us, you are amazing and I love you so much.

I will post more after I return from Houston. Bye for now!

Thursday, August 5, 2010

Provision

I told my mom the other day that all of the formula we've been given for Eva is like manna from heaven. However, I was almost out. But I told her I wasn't going to buy more until I was totally out. When the Israelites tried to save manna for more than a day, it went bad. God provides right now, in THIS moment, and he wants us to rely on Him for the right now, and not worry about tomorrow. So it was just on my heart that I wasn't going to buy more formula until Eva literally had no more to eat. Within 2 days of telling my mom this, look at the provision!

This was all free in the past few days.

There has been SO much formula given to me. Since I had to stop breastfeeding, I have only had to buy 1 or 2 tubs of formula...probably what I would have bought anyway, even if I was still breastfeeding, to use for convenience. I am blown away by God's provision, and by the generosity of those who have given me their formula samples or just bought formula for Eva. We are so blessed and so grateful.

I've been having some pain lately. It's in my abdomen on the left side, and has been keeping me from sleeping. I asked God for relief on my birthday, and He gave it to me. I slept all night with no pain medication at all. The pain is back somewhat today, and I asked the doctor about it. His theory is that the chemo is causing inflammation in my bowels, and that is causing the pain. I pray against the pain, the root of the pain, and any other chemo side effects from today's treatment. I don't want to put up with this physical torment anymore, so I just pray against it, and pray that God's healing power will be upon me.

Thanks for all your prayers and support!!!